Showing posts with label medical. Show all posts
Showing posts with label medical. Show all posts

Friday, January 7, 2022

The Joys of Herding Cats

Ugh, this week was a mess. I had to wake up to an alarm three days in a row, due to various doctor appointments and such. Wednesday morning was the worst. I had to get up at 5 AM (I work nights, so usually I wake up around 8 AM), wrangle the cat, and drive her across town to the cat dentist for her follow up appointment.

Finding the cat was the hard part. On Tuesday Kara heard us mention the vet, and she spent the next 24 hours in hiding. Smart cats are a pain. Wednesday morning she was hiding under the couch. This was probably the most annoying place she could have hidden, because our house is so cramped, that it’s difficult to move the couch. We had to move a few other pieces of furniture to get the couch away from the wall, only for Kara to hide under another piece of furniture.

I thought I had her, and then she just sort of dissipated. I blinked, she turned into a dust cloud. It’s a cat thing. We spent the next half hour tearing the room upside down looking for her. Upending furniture, moving various things around, trying to catch our breath. We’re not as young as we used to be, and moving furniture around at 5 AM is not how I like to wake up. I’d closed all the doors in the house so she couldn’t run into any other rooms. But the cat was just… gone.

Finally I pulled open the curtains, and she was just sitting in the window sill, laughing at me. I picked her up and put her in the cat carrier. Usually she fights me on that part, but this time she was fairly complacent. The last few times she went to the vet, I used up half the Band-Aids in the house. This time she growled once, but didn’t struggle or scratch me. I think she’d decided I’d suffered enough. I still wound up bleeding, though. Apparently there’s an exposed nail on the back of the couch, that I scraped against trying to reach her earlier.

It was an easy enough appointment, just a follow up. She’s recovered nicely from her oral surgery two weeks ago. She no longer has any teeth, and we’re still experimenting with finding the perfect wet cat food. When we got home, Kara forgave me as soon as I let her out of the cage. I’m very thankful that she’s caught up on her shots, so this is the last time she has to see a vet for a good while.

Wednesday, June 9, 2021

The Good, The Bad, And The Fluffy

All things considered, it hasn't been a bad year for me.  It definitely hasn't been a good year, but looking at all the people who died from COVID-19, or lost loved ones to the disease, or lost their jobs during the quarantine, and so on... I feel like I got off easy.  Not scot free, mind you, as we did suffer tragedies of our own, but things could have been so much worse.

While some people had trouble making rent, we actually did better financially this year than we had in a while.  The stimulus checks certainly helped, but I think most of our success was just because we rarely left the house.  We managed to pay off a few credit cards, and now we have more money left over at the end of the month.  

But of course, life can't just let you get off that easy.  We recently found out that one of our cats has a dental condition called stomatitis, and she may need to have all her teeth removed.  The good news is that cats who have this done can live perfectly normal lives afterwards, and can often still eat solid food.  

The bad news is the price.  Apparently this procedure can cost up to $5000.  We might be able to get it done for $3500 if we drive to Knoxville for the procedure.  We are currently weighing our options, and seeing if there are cheaper dentists.  I've seen people online say they had it done for $1500, but they might live in cheaper states.

Someone in the family has suggested putting her down, but I'm not going to do that for an otherwise healthy, four year old cat.  So it's either come up with the money, or... well, I don't know.  But so much for paying off those credit cards.


Sunday, October 28, 2018

Right Now

So this is what’s been going on in my life lately:

A few weeks ago, my wife had to get surgery again.  This is her third operation in three years.  In 2015 she had to go to the emergency room for diverticulitis (blog here).  Last year she had to get part of her thyroid removed.  This month’s surgery was for a hernia that developed as a result of the 2015 operation.

Money is extremely tight.  I am almost done paying off the medical bills from the 2015 and 2017 operations, but right now I’m getting bombarded with bills from this year’s procedure.  I’ve had to call a ton of different offices to arrange monthly payments for different balances.  Plus, of course, my wife can’t work right now.  She took a full month off work (without pay), so we’re out her income for that time period.  I make enough money to pay all the bills, but that’s about it.  We rely on her income to pay for groceries, gas, and other sundries.  So we’re going to be living on Ramen noodles for a few months.

I’ve got the bill schedule worked out, for the most part.  We’ll be doing slightly better by the end of November, and things will continue to improve each month.  By March I should have all the medical bills paid off, maybe sooner.  It’s mostly just getting through the next month that’s going to hurt.

When she had the emergency three years ago, we started a GoFundMe to help with the bills.  I’m not going to do that this time.  I’m still embarrassed about doing it last time.  But we are in just as bad shape as we were then.  I laugh it off on Facebook, but things are bad.

Finances aside, it’s been a difficult month.  She’s in terrible pain, but she’s improving.  At least this time she doesn’t have a huge open wound we have to take care of.  I’m having to do more around the house, which is fine except for the cat boxes.  My problem is two-fold:  I am allergic to the dust, and I am easily grossed out.  Sure, fine, call me a wimp, I deserve it.  But I’ve never been able to get used to that aspect of cat ownership.  I try, I really do.  But when scooping cat litter, I find it very hard not to throw up.  Combine that with my allergies, and I’m just a sniffling nauseated mess for hours afterward.

And then of course there’s the car.  One of our cars is having engine problems.  It looks like it might be an easy fix, but I simply don’t have the time, money, or energy to think about it right now.  I don’t care if it’s a $15 part I can install myself (and it might be).  I just can’t deal with it until life normalizes a bit.  I still start it twice a week so the battery doesn’t die, but that’s all I can commit to right now.  The good news is that our other car works just fine, and my wife can’t drive right now anyway, so there’s no vehicle conflicts.  Not that there would be, since she works at home.

And of course, I’ve got a few health issues of my own, that I keep having to put on the back burner.  If we can just have two years in a row where my wife doesn't need surgery, maybe I'll have the money to look into my own problems.  God I hate our capitalist medical system.

One of our cats had a stroke earlier this year.  She’s okay now, but she’s on a special diet and medication.  Yet another expense.  Also, we’ve had to separate her from the rest of the cats, so she has her own room now.  This house is small enough as it is, but one bedroom has been designated for a single cat.  I’ve had to put some of my hobbies on hold for a while because of it, due to the space limitations.  I love that cat, but it’s asking a lot.

It’s not just money, it’s sanity.  Some RPGs have “sanity points” that can be lost or gained, and going over a certain threshold can have major repercussions for your character.  When talking about depression, people often use the spoon analogy – that you wake up with a certain number of spoons, and doing certain activities costs a certain number of spoons.  When you’re out of spoons, you simply don’t have the energy to deal with anything else that day.

Changing the cat litter costs me a lot of sanity points/spoons.  I could probably get a few back if I could find some time to relax with my hobbies, but those aren’t doable right now.  The time I do spend relaxing right now is ruined by anxiety – How long am I going to get to sit here?  Do I even have time to load up a video game or get my paints out?

And then there’s everything going on in the world today.  Politics are hitting home in a way that they never have before.  I don't really want to rant about politics right now, but the government is worse than it's ever been in my lifetime.  Look, it's no secret that I'm a liberal democrat, but I used to be able to tolerate the Republican party.  For me, politics has always been about voting for the lesser of two evils.  Sometimes your party doesn't win, but life goes on.  But this administration is making mistakes too big to ignore.

Donald Trump isn't a Republican.  He's just an asshole.  And too many Republicans like him just for not being a Democrat.  If you voted for Trump, I forgive you.  But the best thing you can do right now is admit you were fooled.  If you still support Trump after all the racist, misogynist, transphobic, classist crap he's done, then I know it's for one of three reasons:

1. You're completely avoiding the news, or you're in such incredible denial that you think Fox News is the only credible source of current events.

2. You'll vote for anyone with an "R" next to their name.  Fine, be that way, but I never want to hear the phrase "yellow dog democrat" again.  EVER.

3. You are such a self-centered bigot that you don't care who gets hurt as long as they aren't a white male like yourself.

Dear Republicans:  You can still be a good Republican and hate Donald Trump.  I promise you, you can.  He is making your party look bad.  I truly believe that he's going to go down in history as one of the worst presidents ever, but the Republican party doesn't have to go down with him.

Nixon is often said to be "the most popular president nobody voted for."  But you won't be able to deny you voted for Trump like you did with Nixon, not when we can just scroll down your Facebook feed and find all your pro-Trump memes.  If you care at all about what your grandchildren think of you, withdraw your support now.

These next elections could literally decide the fate of the world.  I’ve already voted in this one.  If you haven't voted yet, please consider voting Democrat.  I don't care if you're Republican - remember, Trump isn't.  Trump is just Trumpican.  I've heard several former Republicans say variations of the following lately: "I didn't leave the Republican party, the Republican party left me."

I know it sounds counter-intuitive, but if Republicans really want the Republican party to survive, they need to vote Democrat in the next few elections.   If the Republicans start losing by a landslide over the next few years, maybe they'll get the message.  Maybe instead of being so openly bigoted, they'll go back to just being what they used to be.  But they need a wake-up call first.  They need to know that Republican voters won't take it.

I promise you, the world isn't going to end if the Democrats get in power again.  Let the Republicans earn it back, by transforming their party back into something less extreme.

But that's all wishful thinking on my part. I don't know if people have changed, or if they're just less shy about their true colors now.  I see all the pro-Trump posts on Facebook, and it absolutely amazes me the things people aren't afraid to say.  If Trump were impeached tomorrow, it still wouldn't make a difference to me, because now I see the world differently.  

I am severely depressed.  This is not the world I want to live in.  These are not the people I want to think of as fellow Americans.  When did we go from "Great American Melting Pot" to "Caucasians are the master race?"  Why is it okay to appoint a rapist to the Supreme Court, but transgender people aren't even allowed to use the bathroom?  Why is bigotry considered acceptable behavior now? 

Despite all the crap going on, overall I'm pretty lucky.  We have decent medical insurance, with an annual out-of-pocket maximum that keeps us from going bankrupt.  Best case scenario, we’re currently even.  Maybe we can find the money for actual groceries, or maybe we have to eat nothing but canned beans and Ramen until Christmas.  But I’ve got the bills covered, and we will survive.

But here’s the thing:  Absolutely nothing else can go wrong until March.  I’ve used up all my backup money, called in all my favors, redeemed all my freebies.  If our primary car has suddenly develops an engine problem, we’re sunk.  If our refrigerator dies, we’re sunk.  If another one of our cats has a vet emergency, we’re sunk.  Sure, some of these emergencies could be financed, but I won’t have the money to make the monthly payments.  We are going to have to be very lucky to make it to March.

Sunday, October 7, 2018

Migraines, Gym Class, and the Butterfly Effect

When I was a child, I suffered from migraine headaches.  Here's the story, as far as anyone else knows:

When I was about thirteen or fourteen years old, I started getting migraine headaches all the time.  I'd had them on and off for years, but this time they just wouldn't go away.  I missed a lot of school because of it.  My parents took me to all kinds of doctors and did all sorts of tests.  For the latter half of seventh grade I was given permission to take a study hall instead of PE class.  My headaches got a bit better over summer vacation.

In eighth grade, I changed schools.  This was a much more academically-focused school, and my migraines gradually returned.  After a few months, I had to transfer schools again.  Once at this third school, my chronic migraines faded away for good.  I still get them occasionally, but months apart and only for a few hours at a time.

We always concluded that the chronic migraines were brought on by stress.  A lot was going on around that time.  My grandmother died.  PE class was brutal that year.  My dad got in a car wreck.  My parents started arguing a lot, and eventually divorced.  That second school had a big workload.  When I finally found the school that was right for me, life was less stressful, and some of the other problems were gone by then as well.

But the truth is, I faked it.

Not intentionally, and not in a nefarious way.  I really did get a lot of headaches, but in retrospect I believe the real culprit was clinical depression.  It wasn't a term I'd ever heard at the time, but migraines were something I understood, something I could latch on to.

Every time I used migraines as an excuse to avoid something, I really, seriously could not have brought myself to do that something.  It would have been physically impossible to do what needed to be done - and I did try - so I would tell them it was migraines to get them off my back.  If I stayed home from school, I didn't sit there playing Nintendo all day.  I was fully committed to the excuse.  I stayed in bed, even if nobody else was home to check up on me.

It all started with gym class.

I’ve always hated phys ed.  I do see the benefit of having P.E. in schools – it helps you develop healthy exercise habits, you learn teamwork and communication skills,  and so on.  But I’ve rarely seen a gym class that was done right.  For starters, they always assume that everyone knows how to play every sport.  Those teamwork skills I mentioned?  Nah, most games ended up with the nerds being assigned positions where they could stay out of the way and do the least damage, while the jocks carried the team.  Healthy exercise habits?  Nope, they never taught us calisthenics or yoga or other exercise techniques I might use later in life.  They usually just had us play various sports.   
Most of my worst memories in high school involved gym class.  Several times I let the team down because I didn’t understand the rules, or I simply couldn’t throw the ball far enough to complete a play.  I was bullied a little, though not physically, thank goodness.  Still, every bully-related memory I have happened in gym.  To me, gym class is nothing but a big pile of psychological scars.  
 
Most gym classes were also sexist.  The girls got to sit in the bleachers and treat it as study hall, while the boys played basketball.  God, I envied them.  Occasionally I was in a gym class where the girls did exercises like jumping jacks, but I don’t think I ever saw girls required play an actual sport in high school gym class.  My high school did have cheerleaders and a girls’ basketball team, but that was done separately from the standard gym class I’m talking about. 
 
Honestly, if schools can’t do gym class correctly, I wish they would do away with them.  In my experience, the entire class is set up just to torture non-athletic students.  I suppose the actual athletes might see it as their only respite in the day, and for some students it’s the only class they don’t dread.  But for me, gym class has always reminded me of prison somehow.  I think gym class could be fixed with a little effort.  But gym class as I experienced it should be banned.  At best it’s a waste of time, at worst it scars you for life.
 
Anyway, seventh grade gym was particularly bad.  The coach was like a drill instructor.  Every day, he would have us line up, and walk down the line punching each of us in the stomach.  Not hard enough to hurt – I’m not saying this guy belongs in prison or anything – but just hard enough to see if we’d been toughening up our muscles.  If your stomach gave way or it knocked the wind out of you, he had you do some push-ups.  Even though it wasn’t painful, it was still humiliating, and I’m amazed that it was legal.  (I’m pretty sure the girls were spared this treatment as well.)  It made me afraid of going to gym class every day.  I seriously DREADED it. 
 
The incident that tipped off my migraines was pretty innocuous.  Had it not come after months and months of embarrassing gym incidents, this one would hardly have registered.  I had missed a couple of days because of a cold, during which time they had started on volleyball.  I like volleyball, and I was actually kind of looking forward to it.  After all my disastrous attempts at basketball, I was hoping volleyball would be more my speed.  Unfortunately, the rest of the class got to spend a few days learning the basics while I was out sick, so I was just thrown right in with no instruction. 
 
It didn’t turn out to be much better than basketball.  Volleyball mostly involved standing in place and hoping the ball was never hit in my direction.  My depth perception has never been great, but pre-LASIK it was horrendous.  I would swing my arms too early, or too late, or swing at balls that were nowhere near my zone.  But serving was the worst.  I tried to get the gist of it by watching other people, but when it was my turn, I hit it too hard and sent it across the gym.  I couldn’t take it.  I could feel my face getting hot, and tears wouldn’t be far behind.  My sinuses were still stuffy from being sick, and the result was that I started to choke on my own phlegm.  The other students saw my face turning purple, and in the end I got sent to the school nurse.
 
They gave me a note letting me out of gym class for a few days.  But I was so stressed out by then, I started getting migraines.  These headaches were so bad I could barely see.  With a little finagling, my parents managed to arrange it so I didn’t have to go back to gym for the rest of the year, and I went to a study hall instead.  I was a little less stressed out after that. 

After my grandmother died, my Mom came to me and said, “I spoke with the rest of the family.  We’ve decided that the reason you’ve been having headaches is because all this time when she was sick, she wasn’t in much pain.  We think that you were bearing all the pain for her.  And we thank you.  But now that she’s gone, you don’t have to have these headaches any longer.”  It was a beautiful sentiment, and I wish it had been true.

I changed schools.  My brother graduated that year, so we weren’t as tied to that school, and I was happy never to have to see that PE teacher again.  The new school was more academically-focused.  It was okay at first, but I very quickly got bogged down.  It was a bit like skipping three grades, and I wasn’t up to the challenge.  Now, understand that the previous school was not a bad school, academically speaking.  But with all the other stresses going on in my life, it was not the best time to challenge myself. 

It's a pity.  I really liked some of the classes.  They had a PE class I actually looked forward to, one that actually taught us rules and techniques for the sports we were playing.  It also had a wonderful art class.  I didn’t make a lot of friends there, though.  I was too busy trying to keep up with the classes.  I felt like Bart Simpson in that one early episode where he fakes being gifted.  I started dreading several of the normal classes the same way I’d dreaded PE at the previous school.

Soon I found myself with headaches again.  I saw the school nurse more than some of the teachers.  They called my parents a lot.  Apparently I was spending a lot of the classes with my head down on my desk.  My parents tried everything.  We went to all sorts of doctors, had all kinds of tests done.  I remember having a CT scan, wearing a rubber guard to keep me from grinding my teeth at night, going to a chiropractor, seeing a psychiatrist, and so on.  I missed a lot of school.

I also felt guilty about all the money they were spending on tests.  I remember when we got the results back from the CT scan, telling Dad, “I’m sorry it cost so much and didn’t show anything.”  But he’d been afraid I might have a brain tumor or something, and he replied, “Best money I ever spent.”  Still, I felt like their lives might be better if I wasn't around to be such a burden.

One night I tried to kill myself.  It wasn't a method that would have actually worked, but give me a break, I was a kid.  Basically I tried taking lots of pills.  I went into every medicine cabinet in the house, opened every bottle, and took about half the pills from each.  I didn't want to actually empty any bottles, because if I wasn't successful I didn't want anyone noticing I'd taken them.  But all in all, I probably took about 40 random pills.

My first thought the next morning was, "Damn.  I'm alive."  But I didn't have to go to school.   My parents told me I'd been sleepwalking all night, and they were taking me to the doctor.  The doctor gave me a drug test, which came back negative, so my half-assed suicide attempt stayed a secret.  I never told them.  

One later morning I had a really hard time getting moving.  I really couldn’t miss any more days.  My parents were like, “If you’re going to be sick anyway, be sick there.”  But I couldn’t make myself go.  I just couldn’t.  The school was like this giant block of black dread and I couldn’t in my wildest dreams envision myself willingly walking into it that morning.

In the back of the car, I was like a caged animal looking for ways to escape.  At every red light I considered hopping out of the car and just running.  I was already thinking about just hiding in the bushes instead of going inside once they dropped me off.  But I realized that wasn’t a long term plan, and missing one more day wasn’t going to make me survive the school year.  This had gone far enough.  I told my Dad, “Okay, I hate this school.”

He was immediately understanding.  We talked about it a lot about the pressure while he drove me home.  He considered taking me straight to the local public school, but then he remembered that an old friend of mine went to a different private school.  At this third and final school, things were a lot better all around.  The first school had been sports focused, so of course I didn’t fit in.  The second school was college focused, and I might have made it there if I’d started earlier.  The third school put more emphasis on religion.  It was a good fit for me, at least at the time.  In retrospect, the school had some deep flaws, and if I had kids today, I definitely wouldn’t send them there.  It’s the same school that was in the news a couple of years ago for rejecting a potential student for having gay parents.

But that was the end of the headaches.  My Dad asked me a few years later, “Did we ever figure out what was causing those headaches you used to have?”  I said it was probably just stress, and that was that.

I still feel very guilty about all the money they spent on various doctors, when it was really "just depression".  It probably caused some of the debt they had to dig out of later, and the stress I caused them may have even been a factor in their eventual divorce.

It's one of the most defining events of my childhood, and it's yet one more thing I think would have turned out differently if I'd been born female.  Yeah, I know, "I make everything about gender dysphoria.  Of course I'm going to retcon my headaches to be about it."  But a lot of trans people report similar periods of depression in their teens.

In my case, everything started with gym class, at a school that was overly focused on sports.  Without all that initial pressure to be better at masculine things, I think I would have ended up graduating at that school.

I often think about what my life would be like in that alternate timeline.  If I'd graduated that first school, I would have had an entirely different circle of friends.  I never would have met the guy who introduced me to my wife, so I wouldn't even be friends with her now.  I can almost guarantee I would have gone to a different college, which would have changed a lot of things.  As a girl, I would have had a different set of peer pressures I haven't even considered.  I might still have had migraines and/or depression because of stresses I will never know. 

There's so many possibilities there.  Would I still be a geek?  Would I still be attracted to women?  Would I still have eventually become an atheist?  My mother was so into keeping us up with fashion, I really think she would have loved to have a girl.  It would have changed a lot about my family dynamic, so I might have a completely different personality. 

One question that really haunts me is, "Would I still be transgender?"  What if "female" isn't actually a core aspect of my personality, but "non gender conforming" is?  What if "girl me" was just as stubborn about fitting in with others of my sex?  What if she gradually came to the realization that her birth sex just wasn't for her?  Is there an alternate universe where I'm an FTM?

Believe it or not, these are the things that keep me up at night.

Tuesday, October 6, 2015

Back To Life, Back To Reality

I returned to work yesterday, after being off for about a month helping my wife recover.  She returns to work this Saturday, if she can stand it. Her wound is still pretty big, but she's a lot more mobile now.  She still can't sleep in a bed, but hopefully she can sit up long enough to work a few shifts.  I want her to take all the time she needs, but she's already told her work she'll be back Saturday.

I felt guilty for having taken so much time off work, but simultaneously guilty for leaving my wife alone to go to work yesterday.  Work itself was light, and would have been downright boring if I hadn't had so much to catch up on.  I had nearly 6,000 e-mails in my inbox, no exaggeration.  Luckily 90% of those e-mails were auto-generated notifications I could delete without looking, so it only took a couple of hours to clean my inbox.  I kept getting shaky now and then, and having trouble remember what order to do things in.  Not just with work processes, but even in normal stuff.  Like I was washing my hands in the bathroom, and while trying to use the soap I accidentally reached over and grabbed a paper towel instead.  It's like my muscle memory has gone haywire.

A couple of nights ago I dreamed that my wife came upstairs while I was sleeping, and stood at the foot of my bed, telling me to wake up.  I looked up and she was standing there holding her stomach, with blood on her clothing around the wound.  She said, “We need to go to the hospital.”  Then I woke up for real, and she dissipated.  Took me a while to get back to sleep.

But overall, things are getting better.

Sunday, September 6, 2015

The Waiting Is The Hardest Part

6:32 PM, 9/6

My wife is currently in the hospital.  She's been having stomach problems for the last couple of days, and today we decided it was bad enough to go to the emergency room.  We got there around 10:00 this morning, and spent a lot of time waiting.  She got a CT scan, and it turns out she has something called Diverticulitis, and they have to do Laparoscopic surgery to remove a small piece of her colon.  She's going to be in the hospital for a few days.

I've been very stoic all day, to the point where I was wondering what was wrong with me.  She has intestinal blockage, I have emotional blockage.  Then I got home, called her mother, and it really started hitting me during the call.  Once I hung up, I broke down in tears.  It was the first time today I haven't had to be strong for her, and I just bawled.  It was probably the worst crying fit I've had in 15 years.  I was braying like a hyena, grateful that no one else was there to see it, whilst simultaneously sad that no one else was there to comfort me.

It's silly in a way, as I know she's going to be okay.  Sure all surgeries have some risk, but the doctor didn't sound like this was going to be a particularly harrowing operation.  He said there's a 15% chance she could end up with a colostomy, but if that happens we'll deal with it.  I'm trying not to think about how much more debt this is going to put us in, but we'll deal with that too.  At least we have insurance.

Right this minute she's probably still in surgery.  I've been sent home to get some things, and will stay home until she's settled into a room.  I'll go back out to see her tonight, though they tell me that she'll probably be so loopy tonight that she won't even recognize me.  The waiting is going to kill me.

Update 12:30 AM, 9/7

I was wrong.  Waiting is not the hardest part, unless you mean waiting for her painkillers to work.  I thought it was rough sitting around waiting for time to go back to the hospital, but once I arrived things were terrible.  It was probably one of the worst nights of my life (the other top contenders also involve taking her to the hospital), and of course her night was 1000 times worse than mine.

The doctors told me she'd be loopy tonight, and that it was barely even worth my stopping by because she wouldn't be coherent until tomorrow.  But of course I had to see her.  I got to the room about 10 minutes before they wheeled her bed in.  She was not out of it.  She was tired, but she was very coherent, and in great pain.  She kept screaming over and over, and it just killed me.  I stood by her bed, feeding her ice chips, letting her squeeze my hands, and wishing over and over again that we could just rewind the last few days and do something else instead.

Her nurse was having a bad night, and wasn't good at communicating with my wife.   The machinery kept malfunctioning, and had to be reassembled several times.  There's a breathing monitor that goes off every time she stops breathing at a certain pace.  The problem is, whenever she falls asleep, she starts breathing differently, setting the alarm off.  So she can only sleep for 10 seconds at a time.  I don't know how she's going to get any sleep tonight.

I didn't want to leave her.  I really didn't.  I was going to sit in the chair all night.  But I knew I wouldn't get any sleep.  I'd be okay with that, but I have to sleep sometime, and it would be better for both of us if I'm awake during the daylight hours.  So we agreed that I should head home.  I'm home right now, and I'm going to try to get some sleep, but I doubt it will be much.  I'm heading back out there as soon as I'm up.

Update 6:00 AM, 9/7

I had a hard time falling asleep; I kept seeing images of the doctors cutting her open.  I woke up at 5:30 after sleeping a good 4 hours straight.  I woke up crying, feeling like an asshole for being able to sleep at all while my wife might still be screaming in pain across town.

Update 8:21 PM, 9/7

When I walk past strangers at McDonalds or Wal-Mart or wherever, I find myself resenting these random people for the dumbest reasons.  It's like, how dare they think they have their own problems while my wife is in the hospital.  These people don't know pain.  I'm usually not like that, but tragedy brings out my selfish instincts.

She was a bit better today.  Her family came to see her, as did a couple of friends, and another friend is going to see her tomorrow.  My current plan, despicable as it is, is to go to work the rest of the week.  I need to save my days off until she gets out of the hospital, so I can use them while she's recovering.  She's well cared for this week.  Her mother is going to visit her every day, and I'm going to stop by every night. 

Well, that's the plan.  But I don't know if I can handle work this week.  I'm so shaken.  And I'm starting to get cold symptoms.  It's probably just allergies and stress, though.  I almost ran off the road on the drive home; my mind wandered for a second while I was approaching a sharp curve.  When I got home, once again I no longer had to be strong, and as soon as I turned off the engine I started bawling like a baby.  It only lasted about 30 seconds, though.

So, work tomorrow.  One of two things is going to happen.  Working will keep my mind off my wife, or I'll get stressed out and break down.  But I've been there nearly 16 years, and they like me.  I have two weeks of vacation left this year, a float day, and about a year's work of sick leave.  If I have to leave work, they'll let me, despite being understaffed.

I bought a 12 pack of canned soda this morning, then stupidly left them in the back of the car, in direct sunlight.  When I went out for lunch, two of the cans had ruptured and spilled all over the back seat.  I will try to clean it up when I have time.  I don't have time for much of anything right now; if I did I'd head back to the hospital.  There's a lot to do around the house.  I'm updating this blog a paragraph at a time as I think of things.

We were going to go to a comic convention later this month, but we're going to have to cancel now.  We're thinking about still going but have her in a wheelchair, but first I'm going to try to get a refund somehow.  It's simpler if we just don't go.

Oh, and remember a few days ago when a former DM of mine posted something on Facebook that I found offensive?  Today, I was at the hospital checking my Facebok status, and another friend of mine posted something that ticked me off a little.  A meme that said "A Christian can disagree with gay marriage and still love gay people."  This friend is closer to me than that former DM; in fact, this one is the wife of my best friend. If it were a normal week I would probably reply with a ranty wall of text, but I just don't have the time or energy this week.

My brother did, though.  I read their discussion in the replies.  Offensive friend claims she shared it by accident, but still agrees with the sentiment.  She says she isn't against gay marriage (or is at least undecided), but that she agrees in the general statement - that loving gay people is separate from wanting them to be allowed to get married.  That's some funny definition of love she has.  But again, I'm just going to have to let this one go.

Update 10:33 PM, 9/8

Last night I went home about 8 so I could get some rest. I was having bad allergies (probably intensified by stress) so I took some Nyquil to help me sleep. I finally drifted off around 11 maybe. Then at 1 AM the phone rang. My wife asked me to come back, it was an emergency. She wouldn't say what over the phone.

One dangerous, drug-addled, sleep-deprived drive later, I reached her room. Apparently the mix of drugs was making her sleepwalk. She had woken up (sort of) and didn't know where she was, so she fought her way out of the bed, hurting her dressings in the process.

I stayed all night, and didn't sleep a wink. I tried for the first hour, but she kept getting up. Finally I just resigned myself to sitting up all night. I had to stop her from getting up at least ten times, and she had a different story each time. "We have to go to the baseball game" or "I'm going to the mall."  One time it was even "It's a big world out there and we have to see it."

But worst were the times she woke up and didn't know where she was. I kept having to tell her she was in the hospital and why, and it broke my heart every time. It was like 50 First Dates. I know she hates hospitals, and rediscovering she's in one over and over is Hell. My only consolation is she probably won't remember much of this.

I stayed up until her mother arrived around 10 AM. Then I went home, made some important calls to her work, and napped. I slept very deeply for one hour, then the phone rang. It was more of her work stuff. I tried to fall back asleep, but I couldn't stop thinking of all the things I had to do. Then my wife called again and I had to go back.

I got to nap a bit in the fold-out chair. It wasn't the least bit comfy, but I slept a little better being near her.  But I'm really pissed.  I want to help as much as I can, but I simply can't function with out some amount of sleep.  I can't be of any help if I can't sleep a little now and then.  I respect the medical crew and I know they have lots of patients to check on.  But it's not my job to stay up all night to keep her from sleepwalking.  If I hadn't been there, she would have torn her dressings out again and again. What do single people do? 


I realize they can't spare an orderly to sit in one room all night.  The other alternative would be to strap her to a bed, but waking up restrained is one of her worst nightmares.  She's claustrophobic, fidgety, and has to have things a certain way.  If she was strapped to a bed she wouldn't stop screaming.

Of course they're changing her medication mix tonight, so we'll see how that goes.  Every time we ask how long we'll be here, it gets longer. First it was "until the end of the week", then Monday, now next Wednesday. Having to redress the wound after her escapades probably added a day or two.

We both keep having trouble accepting the reality of it. This doesn't happen to us, must be a dream. This is a life-changing event, and I don't know what things will be like once it's all over. I keep trying to find bright sides. When this is over, she'll have gone over a week without smoking, so maybe that will stick. But I'd rather she smoke 10 times as much than go through this. Yeah, there's an irony in there somewhere but get over it, I'm sleep deprived.  


I'm home right now, and about to try to get some sleep.  I hope the phone doesn't ring, but I'll still come running if she needs me.  I do want to help, but there just aren't enough hours in the day.  There are things that need to be done around here, and I keep getting further behind.  And if I have to stay awake all night while she's sleepwalking, that's fewer conscious hours I have to spend with her when she's actually awake and missing me.  

Update 11:21 PM, 9/9

This was funny... well, not that funny, but right now I have to look for humor where I can find it.  My wife is hooked up to several alarms, that will beep loudly at various times for various reasons.  One goes off when she's breathing wrong, because she's supposed to take deep breaths.  Another beeps when her IV gets blocked, another beeps if it can't detect her pulse, and so on.

My best friend called to see how we were doing.  As soon as he called, my wife had a coughing fit.  This is actually a good thing, because she's supposed to cough in order to avoid pneumonia.  But the coughing made her breathing alarm go off.  Bending her arm too far while coughing blocked her IV, causing another alarm to start.  Then she knocked her pulse monitor off, causing it to think she was flatlining.  So on the other end of the line, my friend heard all these alarms going off, and for all he knew it had been doing that all day. 

I tried talking to him for a couple of minutes, because I miss him.  But I could barely hear him, so I finally told him I'd talk to him later.  Then, as soon as I hung up, all the alarms stopped simultaneously.  I was like, "Seriously?"  My wife and I both laughed.  It's nice to laugh.  I'll try not to think about how long it took any hospital personnel to come in to see what was happening.


Update 12:30 AM, 9/10

God damn it, more bad dreams. I've been sleeping on the couch, because it's easier to imagine that she's in the bed upstairs instead of the house being empty.  I had barely fallen asleep when I had a hallucination/dream that woke me up.  I thought I heard her voice say something clearly in my ear (I can't remember what she said), then I thought I saw her sitting in the recliner opposite me.  Still in her hospital gown, looking sort of zombie-ish.  

I hope I can fall back asleep, but my heart's kind of racing. I'm going to try going back to work tomorrow, so I need to sleep tonight.  There's only so much time I can get off work, and I want to save it for when she's home so I can take care of her.  It's going to be hard not seeing her until I get off work tomorrow night, but it will be even harder if I'm exhausted.

Update 8:57 AM, 9/10

I slept okay eventually.  Sometime in the middle of the night, I woke up for a few minutes and made a little noise, and two cats came running up to make sure I was okay.  My cold/allergies/whatever is getting worse, and I miss my wife, but I'm going to take Dayquil and try to go to work.  I'll make sure work knows I might have to run out of there.

The doctor visited my wife last night while I was away, and apparently let slip something that bothers me.   We think the insurance is pressuring him to get her out of the hospital as quickly as possible.  I guess they know I'm going to hit my out-of-pocket maximum, so they want to pay as little as possible.  The woman has a tube sticking out of her stomach right now, but by all means lets rush things.  Of course, I want her to come home as soon as possible too, but only if it's safe.

Update 1:08 AM, 9/11

On the way to work this morning, I almost took a wrong turn towards the hospital. It was actually painful to turn the wheel and head to work instead.  At work, I could almost actually see the invisible eggshells people were walking on around me.  Turns out my work is very nice about time off, though, so I should be able to take plenty of time to care of her when she gets out of the hospital.

I went straight there after work, and stayed pretty late.  She looks a lot better, and is connected to fewer tubes and wires.  On the downside, she no longer has a direct connection to painkillers, and is on pills instead.  So she's made a lot of progress but she's in a lot more pain.  More good news, the doctor thinks she'll be able to go home on Sunday.  I'm crossing my fingers.

Update 9:24 PM, 9/13

There's a strong chance she'll be able to come home tomorrow.  She still has a tube coming out of her stomach right now, but it's getting removed tomorrow, and I'm getting there early so they can train me how to change the dressings on her wound.

Update 8:20 PM, 9/14

She's home now.  We're having some difficulty finding ways to make her comfortable, and we've got a long road to recovery ahead of us, but I'm glad she's here.